So, the waiting is over the EEG results are in. It was abnormal. So, the waiting starts again. Now I’m waiting for an appointment to go for a sleep-deprived EEG. Then I have to wait for the results, then wait to see the consultant, then do I get to make a decision? A sleep-deprived EEG is a new thing for me, so I have to see its introduction as a positive way in that it may help really pinpoint what’s going on in my brain. The part that makes me a little angry, is that it was apparently strongly suggested that I have one of these EEGs several years ago and I was never made aware of this. It, rightly or wrongly, reinforces for me that my epilepsy does not seem to have been taken as seriously as it could have been. I hope that changes.
Anyway, I digress.
Someone once told me he could “cure” me by putting a castor oil pack on my stomach. Ludicrous I thought and said! Or words to that effect anyway…
The theory behind the castor oil cure is generally attributed to Edgar Cayce, who believed epilepsy was caused by lesions on the lacteal ducts in the abdomen. He believed that if hot castor oil was applied regularly to the stomach, then the combination of oil and heat would cure the lesions and hence stop the seizures. Cayce was an American mystic, who was believed to possess special abilities in healing, amongst other things. He is often quoted in the field of alternative healing. Castor oil is often used as a massage oil and is credited with many health benefits. I’m not so sure that it can cure my epilepsy, especially if my epilepsy is genetic, but I do appreciate the benefits of a good massage!
For centuries doctors, psychiatrists, philosophers and mystics have tried to pinpoint the causes of epilepsy. In 1825, two French students of psychiatry, Camille Bouchet and Jean Baptiste Cazauvieilh, tried to statistically establish the influence of heredity on the condition. They found that out of 110 epileptics, 79 had no relatives who were afflicted with any form of nervous disease and 31 who had a family history of epilepsy, insanity or “hysterical relatives”. Bouchet and Cazauvieilh also tried to determine causes of epilepsy in 69 patients. They found and published that while 26 of the patients had an unknown cause of epilepsy, a staggering 21 had Fright as the cause, 10 Sorrow and for 3 patients, well, their epilepsy was caused by Masturbation! A second set of stats published in 1836 by another French clinician found similar results in 67 patients. Fear was the cause attributed to 35 patients, Drunkenness caused 6 cases, Debauchery another, while Wrath and Misery accounted for 2 cases each! Fear or fright is an interesting one. In the early 1800s, it was believed that if a pregnant woman witnessed a seizure, then her baby would be born epileptic because of the fright the mother got.
The 19th Century was, what is referred to as, the Golden Era of French medicine and it was Jean-Étienne Dominique Esquirol, who gave us the terms Grand Mal and Petit Mal to distinguish between the different seizures witnessed. Bouchet and Cazauvieilh were both students of Esquirol. It’s interesting that these terms are still used today to describe seizures along with Absences, which again has its origins in the French language and can be attributed to Esquirol, I believe.
Epilepsy has been around for as long as man. Indeed, it’s been written about since at least 2000 B.C. when it was attributed, in Akkadian texts, to the Hand of Sin brought on by the god of the Moon. Babylonian texts dating to 1790 B.C. recorded that any slave sold that displayed symptoms of epilepsy, could actually be returned to the seller and the money paid refunded! St Valentine, yep, him of Valentine’s Day fame, is probably the best known of the Patron Saints of Epileptics (apparently there are about 40!). He is also the Patron Saint of Love, Lovers, Young People and Happy Marriages. He was beheaded in 269 A.D. on, yep, you’ve guessed it, 14th February…So, epilepsy has been known about, talked about, studied, feared, reviled, stigmatised, misunderstood, written about and lived with throughout time. Epileptics have been possessed by demons, considered imbeciles, regarded as insane and generally maligned since time immemorial and in the grand scheme of things, people’s perception of epilepsy and those who suffer with it, has only started to change relatively recently.
It’s only taken 4000 years of the written word to get us to this period of enlightenment. Wonder what the next 40 centuries can bring…